Skip to main content
I was forwarded a link to some CF blogs by Julie and was blown away by the grace and strength these people, CF patients, write about their lives and what they have gone through. When I read something like that I wonder what, if any, purpose my little blog has in this world. For a time I felt like I was expressing the experiences of a CF parent, but for nearly a year now I have been reluctant to keep regular posts. Part of the reason is fear of sounding whiny. I want to sound strong for my son, yet most of the time I end up speaking about the sadness I deal with and the elephant whenever it rears its head.

The elephant tried to show up on Thanksgiving Day, but I drove it away, mostly through conversation and Jameson's and the company of family. Jameson's is dangerous, I tell you. It's smooth going down and before you now it, you're smashed. Anyway, the elephant loomed all weekend, waiting to pounce, but I managed to keep it together.

See, that's what I mean by sounding whiny. Am I expressing anything new here? Am I helping people understand? I don't know.

Another thing I worry about is telling too much information. As the kids get older, their lives should remain personal, don't you think?

What I should do is take the time to talk about the book and that whole process. At least it would be documented somewhere so my kids could look it up after I kicked te bucket.

"Hey Jake, here's the story of how dad wrote his first book."
"Dad wrote a book?"
"Yeah, it's that think you use to keep the bookshelf balanced."
"Dad wrote that?"

Just kidding. Sophie's been so supportive, believe it or not, she even came up with a cover idea that is actually pretty cool. We'll see what happens.

Comments

dosepharmacy1 said…
A debt of gratitude is in order for your glorious posting! I very delighted in understanding it.
very interesting blog,nice information.your work is very excellent.

Popular posts from this blog

MARATHON FOOTNOTES (for those who didn't think I would really footnote a stream of consciousness thought): Footnote #1 Academy Award Winning Best Picture Films from 1969 to the Present: Midnight Cowboy, Patton, The French Connection, The Godfather, The Sting, The Godfather II, One Flew Over The Cuckoo’s Nest, Rocky, Annie Hall, The Deer Hunter, Kramer Vs. Kramer, Ordinary People, Chariots of Fire, Gandhi, Terms of Endearment, Amadeus, Out of Africa, Platoon, The Last Emperor, Rain Man, Driving Miss Daisy, Dances With Wolves, The Silence of the Lambs, Unforgiven, Schindler’s List, Forrest Gump, Braveheart, The English Patient, Titanic, Shakespeare in Love, American Beauty, Gladiator, A Beautiful Mind, Chicago, Lord of the Rings: The Return of the King. Footnote #2 Members of the band YES, from 1969 to the present: In 1969, Yes is formed with Jon Anderson on vocals Peter Banks on guitar, Bill Bruford on drums, Tony Kaye on keyboards and Chris Squire playing bass. This group records...

Basement Songs: "Golden Gates" by John Cougar Mellencamp

I’m not sure when my brother, Budd, bought his copy of John (then) Cougar Mellencamp’s “Uh Huh”. The cassette just showed up in the basement on summer, years after its release. Like most of America, I was a big fan of “Pink Houses”, and I was thrilled that now had copies of his other big hits from that album, “Crumblin’ Down” and “The Authority Song.” At this point in his career, Mellencamp was ready to establish himself as a legitimate artist, hence the use of his real name (the record label wouldn’t allow him to ditch the “Cougar” until years later for fear record buyers may get confused….huh?) In addition, there was the radio staple (at least in Cleveland), “Play Guitar”, on side 2, which borrowed heavily from Them’s “Gloria” (Mellencamp often slipped the “G-L-O-R-I-A”’s into his concerts during that number). The rest of “Uh Huh” is filled with more of the same 60’s garage band type of rock that Mellencamp champions, as well as one of Budd’s favorite tunes, the John Prine co-pe...

In Praise of Kanopy

When I was 17, I worked at American Video, a small business housed in the Great Northern shopping strip. My time there was short, as was American Video’s lifespan. The days of the mom-and-pop video stores were cycling out. Blockbuster had just opened in my hometown and within a couple years, American Video, as well as the store where I first fell in love with movies, First Run Video, would shutter their doors. What I loved about these indie video stores was the variety of choices and the limited number of copies of movies each store had. Come in looking for Back to the Future and it’s already rented? You strolled the aisles until you found something similar like Innerspace , or something completely different, like And Now for Something Completely Different, Monty Python’s first movie. Blockbuster, and its cousin Hollywood Video, may have offered more copies of movies, but they didn’t always have the quality. Maybe your Blockbuster was different.   When Netflix and the stre...