Each year around this time, our family comes together to
begin raising money for the Cystic Fibrosis Foundation’s Great Strides Walk.
This is the annual 5K walk that serves as our big fundraiser to help find a
cure for cystic fibrosis (CF). Our family has lived with disease for 11 years, ever
since that December afternoon when my son Jacob was diagnosed with CF. When I
say “family,” I don’t just mean my wife, Julie, our daughter, Sophie, and
Jacob. I mean my parents, siblings and their respective families, Julie
parents, siblings and their families, plus the hundreds of aunts and uncles,
cousins, 2nd cousins, best friends and distant acquaintances from
years past who have all given what they can to help us in our battle. These
people, all of them, are family in some way. How else can you describe these
people who have shown so much love and support for Jacob and our family?
With every new Great Strides campaign comes the task of
writing a new letter asking people for money. Some years it is a great burden,
as the weight of this illness can bear down on the psyche. Other years the
letters seems to flow easily from my fingers because I’m inspired or because I
am desperate, I’m never really sure. What I am sure of is that each and every
year we have done a Great Strides campaign we marvel at the generosity of those
people we call family.
It’s that time again in which I must reach out to all of
you, my close friends, my Facebook pals, my work colleagues and or course, my
blood relatives. I must reach out to you because, although there have been
great strides made in discovering new treatments that may halt to progress of
CF, these type of medicines do not effect all people with CF… not yet. But they
are close, so very, very close. Someday within Jacob’s near future, a medicine
could be available that will allow him to never have to do another breathing treatment
to break up the sticky- life threatening mucus that forms in his lungs, that
will allow his body to grow and be stronger, that will allow him to throw away
the vest and the medicines that he hates so much (but must do to stay
healthy) and that he’ll live a long and full life just like anyone else.
But it takes donations from people like you, and from the
people you may forward this letter on to.
Each year at this time I put my heart on display for all to
see. I have no pride as I plead for help to raise money for Great Strides. Any
parent in my situation would do the same. I hope that you’ll consider following
this link to the Malchus family CF Donation page and helping my son, Jacob, and
all people living with CF. Someday that medicine will become available. Someday
can’t come soon enough.
This year, Sophie has taken the initiative in creating her
own CF page, in writing letters to her friends, and by working on our family
fundraising video. I hope you will watch this video and feel the love that she
poured into putting it together. My daughter adores her younger brother, as the
pictures in this video show. And, like her parents, she will do anything to
ensure that her brother lives a long and healthy life.
Thank you for your time and your continued support of our
family and the Cystic Fibrosis Foundation.
begin raising money for the Cystic Fibrosis Foundation’s Great Strides Walk.
This is the annual 5K walk that serves as our big fundraiser to help find a
cure for cystic fibrosis (CF). Our family has lived with disease for 11 years, ever
since that December afternoon when my son Jacob was diagnosed with CF. When I
say “family,” I don’t just mean my wife, Julie, our daughter, Sophie, and
Jacob. I mean my parents, siblings and their respective families, Julie
parents, siblings and their families, plus the hundreds of aunts and uncles,
cousins, 2nd cousins, best friends and distant acquaintances from
years past who have all given what they can to help us in our battle. These
people, all of them, are family in some way. How else can you describe these
people who have shown so much love and support for Jacob and our family?
With every new Great Strides campaign comes the task of
writing a new letter asking people for money. Some years it is a great burden,
as the weight of this illness can bear down on the psyche. Other years the
letters seems to flow easily from my fingers because I’m inspired or because I
am desperate, I’m never really sure. What I am sure of is that each and every
year we have done a Great Strides campaign we marvel at the generosity of those
people we call family.
It’s that time again in which I must reach out to all of
you, my close friends, my Facebook pals, my work colleagues and or course, my
blood relatives. I must reach out to you because, although there have been
great strides made in discovering new treatments that may halt to progress of
CF, these type of medicines do not effect all people with CF… not yet. But they
are close, so very, very close. Someday within Jacob’s near future, a medicine
could be available that will allow him to never have to do another breathing treatment
to break up the sticky- life threatening mucus that forms in his lungs, that
will allow his body to grow and be stronger, that will allow him to throw away
the vest and the medicines that he hates so much (but must do to stay
healthy) and that he’ll live a long and full life just like anyone else.
But it takes donations from people like you, and from the
people you may forward this letter on to.
Each year at this time I put my heart on display for all to
see. I have no pride as I plead for help to raise money for Great Strides. Any
parent in my situation would do the same. I hope that you’ll consider following
this link to the Malchus family CF Donation page and helping my son, Jacob, and
all people living with CF. Someday that medicine will become available. Someday
can’t come soon enough.
This year, Sophie has taken the initiative in creating her
own CF page, in writing letters to her friends, and by working on our family
fundraising video. I hope you will watch this video and feel the love that she
poured into putting it together. My daughter adores her younger brother, as the
pictures in this video show. And, like her parents, she will do anything to
ensure that her brother lives a long and healthy life.
Thank you for your time and your continued support of our
family and the Cystic Fibrosis Foundation.
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