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GREAT STRIDES 2019

Cystic fibrosis has been in the collective conscious this year.  A recent contestant on American Idol has CF; Salt in My Soul, a heart wrenching posthumous memoir from CF’er Mallory Smith, was released to universal acclaim, and Five Feet Apart, a mainstream Hollywood feature film tackling the illness was not only a critical success, but a box office hit.

More and more people are becoming aware of cystic fibrosis and asking, “What can I do to help?”

This year’s Great Strides is a mere two weeks away. As with every year in the past 17 of Jacob’s life, I’m reaching out for your help.

This past year has been Jacob’s most challenging yet. Three stays in the hospital resulting in pic lines for at-home antibiotic treatments, and just recently a surgery to have a feeding tube placed in his stomach for supplemental nourishment. Throughout ever challenge he faces, Jacob continues to maintain his humor and positive outlook.

And throughout it all, Jacob’s sister, Sophie, his mom, Julie, and I continue our fight to bring an end to cystic fibrosis. The work continues.

Since the CF gene was discovered in the early 1990s, the CF Foundation has work tirelessly to help fund life changing medicines that are nothing short of miraculous.

Currently there are new treatments in the works that will soon be available to prolong and improve the lives tenfold of people living with this horrible illness.

This is not hyperbole.  Within a year, Jacob’s life could change dramatically, as a new drug combination becomes available that targets his specific CF genes.

This breakthrough makes me cry, thinking of the struggles Jacob has endured, and praying that many of his burdens will be lifted, not only physically, but emotionally and spiritually.

I also think about those families who lost the fight to CF and won’t be able to experience this joy, and the families who’ll still wait for the day when their doctor tells them that the medicine is available for them.

We still need your help. And, as I say year in and year out, every single dollar helps.

Think about your Netflix, Amazon, Spotify, Apple Music or Amazon subscriptions. Can you spare what you pay them each month to help end cystic fibrosis? Perhaps a little more?

In less than 30 years, the CF Foundation has literally changed the world and the lives of generations of families living with CF.  With a cure so close, they’re not giving up, and neither can we.

Please follow this link. Please donate. And please help change the meaning of “CF” from cystic fibrosis to “cure found.”

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