Skip to main content
Been a tough week getting motivated to run. Lots of issues dealing with the whole writing thing. I know, stop complaining, right? Today is the last day of shooting for American Standard. That's pretty darn exciting. Let's all hope it turns out as great as we hope it can. After working a month on a project with Wes' friend, had to ditch it because there is an exact duplicate project going on with a big studio. That's been the frustrating and depressing element of the past couple days. Sometimes, being a writer sucks.

So, with the thought of having to come up with some new ideas, plus trying to thing of a plot for Soulless 2, I didn't run very long this morning. That's not good, since I have to run 9 miles this Sunday, Man, am I going to be hurting come Monday morning.

We've raised 800 dollars so far, which is pretty good all things considered. Not sure how much we'll end up raising this year. I started LATE and it's been a rough year for people financially. I received a great letter from a former co-worker, Lindsay Rogers. He used to work with me at Klasky Csupo and was a constant ray of support and optimism. The envelope was decorated by one of his daughters (at least, I assume it was one of his daughters). On it, there was a circle around the words Cystic Fibrosis with a slash through the words (think Ghostbusters). How thoughtful that they took the time not only to write a kind letter, but to show support and enthusiasm with the artwork. I think it is very touching.

Jake is on Pulmicort for a month, in place of his dosages of Cromolyn. Pulmicort is a steroid. He was put on it because he's had a cough every time he gets really excited (like running or, especially, when Sophie makes him laugh REALLY REALLY hard). I can't tell you how painful it is to write that he even has a small cough. I don't want to have these symptoms of Cf. I know that's selfish because there are so many kids sicker than Jake, but it's how I feel.

I've said this before, but it's worth repeating. You live your day in this sort of vacuum. A routine forms and the constant reminder of the illness kind of gets placed away somewhere where you don't collapse from angst and stress. But the moment you acknowledge that something has changed... that something may be getting worse... it's a little devastating. And a piece of you crumbles.

Running 9 miles suddenly seems like nothing.

Comments

Popular posts from this blog

MARATHON FOOTNOTES (for those who didn't think I would really footnote a stream of consciousness thought): Footnote #1 Academy Award Winning Best Picture Films from 1969 to the Present: Midnight Cowboy, Patton, The French Connection, The Godfather, The Sting, The Godfather II, One Flew Over The Cuckoo’s Nest, Rocky, Annie Hall, The Deer Hunter, Kramer Vs. Kramer, Ordinary People, Chariots of Fire, Gandhi, Terms of Endearment, Amadeus, Out of Africa, Platoon, The Last Emperor, Rain Man, Driving Miss Daisy, Dances With Wolves, The Silence of the Lambs, Unforgiven, Schindler’s List, Forrest Gump, Braveheart, The English Patient, Titanic, Shakespeare in Love, American Beauty, Gladiator, A Beautiful Mind, Chicago, Lord of the Rings: The Return of the King. Footnote #2 Members of the band YES, from 1969 to the present: In 1969, Yes is formed with Jon Anderson on vocals Peter Banks on guitar, Bill Bruford on drums, Tony Kaye on keyboards and Chris Squire playing bass. This group records...

A Trip Through the "My 90's Tapes" Collection Pt. 9: Mötley Crüe, "Girls, Girls, Girls"

Column 3, Row 13: Mötley Crüe , Girls Girls Girls. I was never a big fan of Mötley Crüe. I liked their radio hits, but I never listened to one of their albums in their entirety until 1989’s Dr. Feelgood , which was orchestrated in a way to dominate radio stations and suck in casual fans, like me, who had trouble getting past the Crüe’s purposeful sleaziness. That said I always admired them more than the other Sunset Strip bands. Bassist Nikki Sixx and drummer Tommy Lee were such a formidable rhythm section and laid down a solid groove to all their music. Guitarist Mick Mars had a knack for making his guitar hiss sinister, matching his perpetual scowl. Vince Neil was nothing to write home about as a vocalist, which made his unpolished singing just a little more intriguing than most of the other front then who dominated mainstream rock in the mid-late 80’s. Girls Girls Girls was released in May of 1987, just in time for a long summer of Mötley Crüe taking over the mi...

A Short Tribute to Jacob on his 23rd Birthday

Jacob turns 23 today.  As I write this, he's in the other room watching Deadpool and Wolverine laughing his ass off. I love that he's held on to his affection for comic books and video games into adulthood and how he's able to quote a movie after seeing it only once.  What I love more is that he remains a caring and empathetic human being, despite the hardships he's faced in life, that he continues to be funny and creative, that he's passionate about the issues that are important to him, in particular LGBTQ rights, and that he's supportive of his friends, his sister, and all of his cousins. Is he perfect? I don't give a shit. He's my son and I'm so damn proud of him. He's a fighter and he inspires me almost every day. I started blogging 21 years ago, as I began training for a marathon to raise money for the Cystic Fibrosis Foundation. If you dig around in the "Thunderbolt" archives, you'll find updates on his health, the many Basem...