Tuesday, November 29, 2005

Thanksgiving was really joy this year. Although the sadness of Kathy's death was felt by all, I really thought there was less stress than usual. All of the families had a wonderful time. We played football! I haven't done that in 12 years. I think it was the most enjoyable football game I've had since high school. Of course, I tweaked my knee and have been feeling a twinge ever since. I chose not to run Friday or Sunday, hoping the pain would subside. For the most part, I feel okay. I do get those occasional bouts of fear that I won't be able to walk in ten years or so. Have to push those aside... at least for another month.

Donations have begun to come in. I am happy to say that we've raised over $1000 so far. I'm not sure how much we'll raise this year. Every small bit counts, especially in a year that has seen two major catastrophes in the world.

I've been having some hard days lately. I think about the future and hate that I don't feel optimistic. I want to cry out to the world that my son is going to beat the odds... but there is a crushing feeling in my gut... another voice keeps saying the opposite. I hate myself for feeling this way. I hate myself for admitting these fears and feelings. I want to be full of hope. But too often, I just want to cry and say "why him? Why Jacob?" And I get pissed off at God and want to shout from the roof tops "Take me instead!"

But it doesn't work that way, now does it? I am so thankful for the hope and optimism of our family and friends. They lift me up... they lift us all up. Maybe it's the weather. I hate the cold. Or maybe I'm just feeling weak and useless. I can't fix Cf. I don't have that power. And soon, my body won't allow me to punish it anymore. Then what? What can I do that will inspire people to donate to this cause?

That's the real challenge. Keeping other people involved and supporting the search for a cure. I don't know how Julie can read about the effects of the illness and not be more downtrodden. Me? I feel like I'm betraying our family just writing these feelings. But you all have to know what it's like. You have to know about this rollercoaster. And don't feel sorry for me. Feel sorry and say prayers for the people with CF. They're the ones who need you.

Have to go now.


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