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Showing posts from April, 2019


Cystic fibrosis has been in the collective conscious this year.  A recent contestant on American Idol has CF; Salt in My Soul , a heart wrenching posthumous memoir from CF’er Mallory Smith, was released to universal acclaim, and Five Feet Apart , a mainstream Hollywood feature film tackling the illness was not only a critical success, but a box office hit. More and more people are becoming aware of cystic fibrosis and asking, “What can I do to help?” This year’s Great Strides is a mere two weeks away. As with every year in the past 17 of Jacob’s life, I’m reaching out for your help. This past year has been Jacob’s most challenging yet. Three stays in the hospital resulting in pic lines for at-home antibiotic treatments, and just recently a surgery to have a feeding tube placed in his stomach for supplemental nourishment. Throughout ever challenge he faces, Jacob continues to maintain his humor and positive outlook. And throughout it all, Jacob’s sister, Sophie,